We hebben wat documenten opgesteld ter ondersteuning van u en uw familie bij deze gesprekken, met name als u en uw familie elkaar niet regelmatig spreken. De sjablonen en informatie kunnen echter ook nuttig zijn voor gesprekken met naaste familieleden. Dit zijn natuurlijk slechts ideeën die u kunt aanpassen aan uw individuele omstandigheden.
Please find below some suggested wording for a letter/email to be used as a follow-up to distant family members after your initial introductory letter/ email, if you have not received a response.
Dear [insert family member name],
I hope you are well. I thought I would write to you again, as I did not receive a reply to my last [delete as appropriate] [letter,email/text], telling you that I have a rare condition, which is hereditary. This means that this condition runs in our family among those who are related to me by blood, and who may share the same gene. This may include members of our extended family, but not in-laws.
I know it can be difficult to talk about such matters, but I would be happy to explain more and point you to the information you may need, so that you can decide whether to discuss this with your doctor and your family. Please do get in touch if you would like me to share some more information with you, by email, or perhaps we can arrange a time to talk.
Kind regards,
[Insert name/signature]