The Family Dialogue Tool guides you through a few simple questions. These lead you to a number of templates that can be used to support conversations with distant relatives (who are related to you by blood), to provide them with the information they need. The templates are for communications with distant family members, particularly if you and your family are not in close contact. But you may also find the templates and information useful when thinking about how you communicate with close relatives. Of course, these are just ideas that you may want to adapt to suit your personal circumstances.
These are there to help you understand what your diagnosis means for you and your family, and to suggest other amyloidosis support groups and organizations. You may want to share these resources with your family members if they have questions.
The answers provided in the FAQs may help you to understand the disease facts and figures, what the symptoms are, what treatments are available and how they work. They can also provide guidance on how to deal with the emotions that can come up when you hear that you have a hereditary disease, and that members of your family should also see a doctor.
Remember that you’re not alone with your diagnosis of hATTR amyloidosis. There’s a whole community who can provide the information and support that you need, which we’re proud to be part of.