It can be worrying to learn that there is a genetic condition in the family. Having to explain that you have hATTR amyloidosis and that your relatives may also be affected can be overwhelming. Your relatives may be reluctant to get a genetic test – the crucial first step is talking to them and empowering them to talk to a doctor to understand if genetic counselling and testing are needed.
That’s why we’ve created some information and templates to support you and your family with these conversations.
The Family Dialogue Tool ©2021 Developed and produced by the Amyloidosis Alliance in collaboration with Alnylam. Funded by Alnylam Pharmaceuticals Switzerland GmbH. All Rights reserved
With immense thanks to Koenraad Verhagen